X

Chinese (Simplified)

×

Home
About
Information
Galleries
Research
Patients
Contact
- Support Network
- Doctors

MENU

Whats New

Patient Stories

Dego’s Disease

Our beautiful daughter, Maia Lily Douglas, was born at Barnet...
My Journey with Degos

In the Fall of 2012, I developed unusual sores on...
Ernie, by Sue DuPont, of Albany, NY

Hello, My name is Sue DuPont, the mother of 22...
Judith and Degos

I am Judith’s husband and thought I should write our...
Julia’s story

Hi everyone, I’m so glad to finally be able to...

Upcoming Events

A Zeal of Zebras Gather in Harrisburg

National Organization of Rare Disorders (NORD)and Life Sciences PA promote Rare Disease Day. Rare Disease Caucus Co-Chairs Senators John Blake and Judy...
8th Orphan Drugs & Rare Diseases

25th - 26th September 2018, Hyatt Regency Boston, Boston, MA, USA

Contact Us

Name*
Email*
Phone
Category*
Message*
Name
This field is for validation purposes and should be left unchanged.

The Degos Disease Support Network is a contact group, a support group and an information hub for those affected by Degos disease.

theresa@degosdisease.com

Quick Links

Patients
- Where in the world?
- Stories
Research
Contact
- Support Network
- Doctors

Follow us on Twitter

Tweets by @degosdisease

Copyright © 2018 Degos Disease. All Rights Reserved.

Website Designed and Developed by Positive Results Marketing Inc

Follow via Facebook Follow via Linkedin Follow via Twitter Follow via Youtube Follow via Google Follow via Pinterest Follow via Instagram Mail to