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Steffens Scleroderma Foundation Virtual Cruise for a Cure

Steffens Scleroderma Foundation Virtual Cruise for a Cure
July 2, 2020Degos Disease AdminNewsUpcoming Events

Dear Friends,

You’re invited to attend the Steffens Scleroderma Foundation’s Virtual Cruise for a Real Cure to raise awareness and funds to fight scleroderma and Degos disease.

Typically, this annual fundraising tradition involves boarding the Dutch Apple to take a boat ride on the scenic Hudson River. Due to the pandemic and the need for social distancing this summer, we’re asking you to join us, virtually, for an hour of fun for a great cause!

Tickets are $40, tax-deductible, and include an event shirt, online auction and 2 raffle tickets for great prizes. Raffles and online auction will include gift certificates to Capital Region restaurants, gourmet gift baskets, and entertainment tickets. Proceeds will support research to find effective treatments and a cure for scleroderma and Degos disease, and medical education and awareness programs to help speed diagnosis.

So grab your favorite beverage and a comfy seat and join us on July 12th from the comfort of your backyard, deck, or living room. Here are the details:

Virtual Cruise for a Real Cure

Sunday, July 12 at 3:30 pm

During the hourlong online event, we’ll:

  • Celebrate our supportive community
  • Raffle off dozens of incredible prizes
  • Take a video cruise on the Hudson to learn some fun facts about the historic river
  • Announce virtual auction winners
  • Hear what’s new in scleroderma and Degos disease research and professional education from Dr. Lee Shapiro

To register:

https://www.eventbrite.com/e/scleroderma-virtual-cruise-for-a-real-cure-fundraiser-tickets-109690934538

Once you’ve reserved your spot for the Virtual Cruise, snap a photo of yourself and share it on Facebook using #SteffensCruise4Cure.

Let’s not let COVID-19 keep us from getting together to support a worthy cause! We’ll see you, virtually, on July 12th!

Sincerely,

The Steffens Scleroderma Foundation Events Committee

Board of Directors

Ernie DuPont: President

Linda Meenan: Vice President

Treasurer: Carla Gage

Secretary: Michelle Morgan

Chief Medical Officer:  Lee Shapiro, MD

Associate Medical Officer: Jessica Farrell, PharmD

 

Patricia Clausi

Celeste Freeman

Jennifer Hoffman

Donna Langan

Peter Meenan

Jenny Sparano

Rosemarie Van Patten

Theresa Slayton

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