Donate Today! en English▼
X
ar Arabiczh-CN Chinese (Simplified)nl Dutchen Englishfr Frenchde Germanit Italianpt Portugueseru Russianes Spanish
HealthFlex
×
  • Home
  • About
  • Information
    • Events
    • What is Degos?
    • External Links
    • For Caregivers
    • For Doctors
      • An overview
      • Diagnosing Degos
      • Prognosis
    • Treatments
    • Whats New
  • Galleries
    • Photo Gallery
    • Video Gallery
    • Degos Disease Symposium
  • Research
    • Articles & Papers
    • Donate
    • How to help
    • Questionnaire
    • Histopathological Criteria
    • Malignant Atrophic Papulosis
  • Patients
    • My Journey with Degos
    • Patient Stories
    • Where in the world?
  • Contact
    • Support Network
    • Doctors

Steffi Germany

Steffi Germany
November 7, 2017Degos Disease AdminPatient Stories

In year 2000, if I was 21 years old, I’ve got the degos diagnose. The doctor said, that this disease leads to death, so I was very shocked. Then I was in Universitätsklinik Würzburg for many tests, but my degos is only cutan. In the next year I had to take aspirin and pentoxiphillin. Nevertheless I catched 35 – 40 lesions.

If I was 22 I became pregnant. So I took off the medicin. In July 2002 my son Aaron was born. My last lesion I’ve got in my pregnancy. Since the birth of my son, I’ve dont got a new lesion, though I don’t took any medicin. This year in july my son will be two years old and often I have fear, that I have transmit my degosdisease, but my hope is that I have a benigne form of degos.

All patients I wish power and hope for life!

Steffi

print

Upcoming Events

  • Steffens Scleroderma Foundation Virtual Cruise for a Cure

    You’re invited to attend the Steffens Scleroderma Foundation’s Virtual Cruise for a Real Cure to raise awareness and funds to fight scleroderma...

  • A Zeal of Zebras Gather in Harrisburg

    National Organization of Rare Disorders (NORD)and Life Sciences PA promote Rare Disease Day. Rare Disease Caucus Co-Chairs Senators John Blake and Judy...

Patient Stories

  • StephRose

    I've decided to film this series of videos to share...

  • Dego’s Disease

    Our beautiful daughter, Maia Lily Douglas, was born at Barnet...

  • My Journey with Degos

    In the Fall of 2012, I developed unusual sores on...

  • Ernie, by Sue DuPont, of Albany, NY

    Hello, My name is Sue DuPont, the mother of 22...

  • Judith and Degos

    I am Judith’s husband and thought I should write our...

Contact Us

  • This field is for validation purposes and should be left unchanged.

The Degos Disease Support Network is a contact group, a support group and an information hub for those affected by Degos disease.

theresa@degosdisease.com

Quick Links

  • Patients
    • Where in the world?
    • Stories
  • Research
    • Articles & Papers
    • Questionnaire
    • Donate
  • Contact
    • Support Network
    • Doctors

Follow us on Twitter

Tweets by @degosdisease
Copyright © 2018 Degos Disease. All Rights Reserved.
Website Designed and Developed by Positive Results Marketing Inc
Follow via Facebook Follow via Linkedin Follow via Twitter Follow via Youtube Follow via Google Follow via Pinterest Follow via Instagram Mail to