Events
Steffens Scleroderma Foundation Virtual Cruise for a Cure
You’re invited to attend the Steffens Scleroderma Foundation’s Virtual Cruise for a Real Cure to raise awareness and funds to fight scleroderma and Degos disease.
Past Events
A Zeal of Zebras Gather in Harrisburg
National Organization of Rare Disorders (NORD)and Life Sciences PA promote Rare Disease Day. Rare Disease Caucus Co-Chairs Senators John Blake and Judy Ward, and Representatives Marcy Toepel and Mark Longietti will make remarks honoring Pennsylvania’s Rare Disease Awareness Day.
8th Orphan Drugs & Rare Diseases
25th – 26th September 2018, Hyatt Regency Boston, Boston, MA, USA
NORD Rare Summit
October 15 and 16, 2018 Marriott Wardman Park2660 Woodley Rd NW Washington, DC 20008
2018 International Conference on Degos Disease at The National Institutes of Health
The first International Degos Disease Symposium is scheduled to occur Friday, April 27th, 2018, at the NIH Clinical Center Building 10 in the FAES Conference Rooms 3 & 4 on the National Institutes of Health (NIH) Campus in Bethesda, Maryland.
The Ann Steffens Scleroderma Research Foundation
The Ann Steffens Scleroderma Research Foundation is holding a dinner in honor of Dr Shapiro as the National Scleroderma Foundation Doctor of the Year on October 28, 2017 at Riverstone Manor, Scotia NY.