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Welcome | The Degos Disease Support Network

THE DEGOS DISEASE SUPPORT NETWORK WEBSITE

img1This website was created by Judith Calder, a Degos patient in Sussex, England.

We are grateful that Judith continues to be a tremendous support to all Degos patients around the world.

We are a network of supporters and the information hub for those affected by Degos disease.

There are a dedicated team of professionals from around the world, who share their research and clinical findings on our website. You can find their contact information here also. They have made themselves available to patients and physicians seeking accurate diagnoses and effective treatments for their patients with Degos disease.

We encourage all Degos patients to share their stories to help physicians better understand the effects of Degos disease on their patients. We also have a goal to create an international patient registry to better track and study all patients diagnosed with Degos disease.

Medical professionals who are seeking help will find information, links to medical sites and to ongoing research.

Our Website does not host any form of advertisement.

UPCOMING EVENTS

Scleroderma Cruise for a Cure

DATE

Sat, Jul 17 | 3:30 PM
Intersection of Broadway and Quay St

VENUE

DEGOS DISEASE PATIENTS

Degos Disease Doctors

THE DEGOS DISEASE SUPPORT NETWORK WEBSITE

Dr Patrick Whelan

Lakeside Community Healthcare

Dr Noah Scheinfeld

New York, NY

Dr Athanasios Theodoridis

Hautklinik und Immunologisches Zentrum

Prof.Christos Zouboulis

Hautklinik und Immunologisches Zentrum

Patient Stories

StephRose

Dego’s Disease

My Journey with Degos

Ernie, by Sue DuPont, of Albany, NY

Judith and Degos

Julia’s story

Past Presentations

Click on any of the videos below to watch

USEFUL ORGANISATIONS

Useful links to other websites

The information provided on www.degosdisease.com is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her physician.

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WHATS NEW

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